09/03/04 - Terry Brown

Good News/Bad News

Had the family meeting with David's doctor yesterday and here is where we stand. The tests that they ran on David this week showed that his stomach is not emptying as it should, which would explain why David continues to throw up so much. This was disappointing for us as he will need to keep the fistula in his stomach to continue to drain out his stomach contents.

The good news is that we are in contract negotiations with Georgetown's Transplant team. If all goes as planned David may be transferred to Georgetown next week for his transplant work-up and evaluation. Once David is under transplant protocol it will be a 3-6 month wait to procure a viable organ for him. He will hopefully remain well in Rehab while we wait for an organ donor!

Once an organ is procured his transplant team will have a 8-12 hour window to get the organ transplanted in David. The transplant will be performed at Georgetown and David will remain at Georgetown for probably 9 months! Which means, that David probably will not come home to me until sometime next year, if all goes as planned. That is a very long time and we will face alot of uncertainties in the year ahead...as we all know there are no guarantees in life! Just continue to pray for David that he can remain well enough to receive this transplant...

Terry