05/16/04 - Terry Brown

Good Visit With David Today...

It was good to have a day off again and be able to spend most of it with David. I always try and get there early so that I can get a good parking space in the parking garage. My "new" Sunday routine is to have breakfast in the hospital cafeteria and then work on my sweepstakes entries in the family waiting room on the 5th floor.

They had David sitting up in a chair today. Boy, does he HATE that chair! The hard part is the fact that he has no muscle control and then add that to the fact that he really isn't comfortable with 10 drains and tubes coming out of him! He amazes me everyday that he has such a strong will to survive. He got a little nasty with his nurse Matt yesterday, but that may be a good thing because that means that he is at least feeling something again! We tried to watch The Blues Brother on his TV today. He drifted in and out from being alert to going to sleep in his chair with his don't bother me today look! He was giving Matt a hard time with following as we call them, suggestions today. I really think he just wanted to be left alone today and was tired of people asking him to do all of this crap...LOL!

I was watching another patient walking laps around the floor today and was thinking to myself, how wonderful that will be when David is at that point! He will probably remain open for another 3-4 weeks now! The doctors want to make sure that all of the infection is gone because they can only skin graft him once to close him up! I paid for another two weeks of TV today...so once again my heartfelt thanks to everyone who sent a dollar or two for David's TV...it's become his only lifeline right now! Matt said yesterday, he was even changing the channels :o)

Terry